Rare Disease Day — 28 February

This February 28 is Rare Disease Day. With so many things going on in the world around us, it’s very easy to put off important things like health. That’s why the last day of February each year we mark our calendars to bring awareness to rare diseases. An average of 1 in 20 people live with a rare disease at least once in their lifetime, few of which see any sign of a cure. The goal of Rare Disease Day is to improve knowledge amongst the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare diseases.

Founded by the European Organization for Rare Diseases, the first Rare Disease Day was celebrated in 2008 on February 29 . A “rare” date that happens only once every four years. Since then, Rare Disease Day has taken place on the last day of February, a month known for having a rare number of days. The day is held to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. Treatment for many rare diseases is insufficient, as are the social networks to support individuals with rare diseases and their families.

Individuals observing Rare Disease Day take part in walks and press conferences, organize fundraisers, write en masse to government representatives, along with holding events, gatherings, and campaigns. The day also includes an open session of the European Parliament specifically dedicated to discussing policy issues relating to rare diseases. The days leading up to Rare Disease Day include other policy-related events in numerous locations, such as a reception in the British Parliament where policy makers meet with individuals with rare diseases to discuss issues such as equal access and availability of prevention, diagnosis, treatment and rehabilitation.

Each year since its beginning there have been thousands of events stemming from races and walks to art exhibits and workshops. These events are held to bring attention to policy makers and inspire change in the community. Historical monuments such as the Colosseum and the Empire State building have taken steps in sending messages of solidarity on this day by lighting up with the iconic pink, blue, and green colors, providing hope for millions world-wide.

When?
10 months from now
28 February
Countries
Collections